Friday, February 8, 2013

February 8, 2013 - Congenital Heart Defect Facts

  • It is estimated that 40,000 babies are born each year with Congenital Heart Defects in the United States alone.
  • CHD is the most frequently occurring birth defect and is a leading cause of birth-defect related deaths worldwide.
  • More children die of CHD than all childhood cancers combined.
  • Some CHDs may not require treatment, other than periodic visits to a Pediatric Cardiologist. Others can be treated with medications or repaired with surgery and/or procedures. Complex defects may require several surgeries and are never really cured.
  • Although some babies will be diagnosed at birth, sometimes the diagnosis is not made until days, weeks, months, or even years after. In some cases, CHDs are not detected until adolescence or adulthood.
  • Many cases of Sudden Cardiac Death in young athletes are caused by undiagnosed CHDs and Childhood Onset Heart Disease.
Despite these statistics, newborns and teen-aged athletes are NOT routinely screened for Congenital Heart Defects and a disproportionately small amount of funding is available for research and support.  Source: The Congenital Heart Information Network (

For more information, or to donate towards CHD research, please visit:


1 comment:

Joanna said...

Such a sad, scary example of our health care system being reactive instead of proactive. Thank you for sharing this--I didn't know any of it, I'm sorry to say. I definitely thought every baby was thoroughly screened. Hopefully someday soon, no family will have to go through the heartbreak that Christine and Kevin (and their loved ones) are experiencing.