Today is not only Valentine's Day, but also the final day of Congenital Heart Defect Awareness Week. The week has been emotional: starting on the 4 month anniversary of Kyle's death...peaking on the day he would have been 5 months old...and now ending on "the day" of celebrating love.
I know he was so young, but when I think about him now I often pray that in those days when he was very, very sick he had some way of knowing or feeling that he was not alone...that so many people near and far around the world were praying for him...loving him...trying to give strength to his fight.
While I give thanks for the healthy lives of my own children today, I can't stop thinking of this poem from Kyle's funeral program. And I hope he knows that especially in the moment when he passed away, he was not alone then either.
To conclude my CHD series with some hope, please read this story and watch this clip of a young hero: Hunter Paulin, who lives with CHD and ran in the football for the Superbowl this year. With more widespread screening, awareness and research, I pray that more babies born with CHD have the opportunities that Hunter has had to live an active, healthy, and happy life.
In loving memory of sweet Kyle Michael
September 10, 2012 - October 7, 2012